Diagram
Definitions
Clinical data: data collected in the course of clinical care by medical professionals
Medical records: patient records of interactions with the healthcare system
Medical research data: data collected from patients in the course of medical research, which may or may not be identifiable and sensitive
Clinical research data: personal medical data collected in a clinical context for research purposes
High compute analysis: data that requires specialized computing resources for analysis
Anonymized data: data that has had individual identifiers removed, but could be subject to re-identification (remains sensitive)
Small data: data whose total volume is less than a few dozen gigabytes
Large data: data whose volume is much larger, including multi-terabyte datasets or larger
Publication data: data for publication as Open Data, either as a supplement to a publication, or as a published dataset on its own
Specialized medical data repository: a repository of highly sensitive medical data, often a combination of clinical, research, and administrative data from the healthcare context
Data collection: Structured or semi-structured data ready to be analysed
Data Sensitivity
- Personal only: Favorite cheese
- Personal and Private: Anonymized Head CT
- Personal and Identifiable: Personal Name
- Personal, Private, Identifiable: Medical Chart