I need to store my data

Diagram

Definitions

Clinical data: data collected in the course of clinical care by medical professionals

Medical records: patient records of interactions with the healthcare system

Medical research data: data collected from patients in the course of medical research, which may or may not be identifiable and sensitive

Clinical research data: personal medical data collected in a clinical context for research purposes

High compute analysis: data that requires specialized computing resources for analysis

Anonymized data: data that has had individual identifiers removed, but could be subject to re-identification (remains sensitive)

Small data: data whose total volume is less than a few dozen gigabytes

Large data: data whose volume is much larger, including multi-terabyte datasets or larger

Publication data: data for publication as Open Data, either as a supplement to a publication, or as a published dataset on its own

Specialized medical data repository: a repository of highly sensitive medical data, often a combination of clinical, research, and administrative data from the healthcare context

Data collection: Structured or semi-structured data ready to be analysed

Data Sensitivity

Venn diagram of data sensitivity: personal, private, identifiable
  • Personal only: Favorite cheese
  • Personal and Private: Anonymized Head CT
  • Personal and Identifiable: Personal Name
  • Personal, Private, Identifiable: Medical Chart